One family’s very happy news!

“I just had to sit down and write to tell you all the good news. Yesterday my neuro-oncologist called to let me know that the pathology from UCSF came back as a anaplastic oligodendroglioma Grade III. This has lifted our spirits and know that God answered prayers, and very specific prayers!! My neuro-oncologist had originally consulted and stated that they would be rechecking pathology but not likely that it would change. I had accepted the fact that I had a glioblastoma although I was determined to beat the odds. The anaplastic oligodendroglioma is still “not curable” but certainly a better prognosis than the GBM. My doctor states 10-14 years is average, rather than the 18 months to 3 years of a GBM!!! She has seen 20 year survival and more. I can’t tell you how much this has lifted all our spirits. The treatment plan has also changed as I was given the choice to do radiation now along with oral chemotherapy called Temodar. Or, just chemotherapy for 1 year and continue with the MRI’s. I have chosen to do the chemotherapy at this time, which will start in another 2-4 weeks. The doctor also said there are a few markers that put me at an even better survival and response to chemotherapy treatment. Also, we saw the MRI’s and she has stated what they would call “a total gross resection of the tumor”. This means no findings of tumor cells at this point. She was very positive about the situation. They also checked the original pathology from the biopsy at Mercy General and have confirmed the new diagnosis! I needed to post this so everyone knows how pleased we are with the “new” diagnosis and how we cannot thank you all enough for the prayer and love that fills us each day!! We are truly blessed, and I would not change our life as I have seen it change so many around us. I will continue to update but wanted to get this out there so everyone can take a huge deep breath and thank God for His healing hand. Thank you from the deepest part of our souls!! With pure Love, Nicole”

The Red & Orange House relies on support from individual donors to maintain our work in hospitals and other healthcare facilities. Each gift brings another art-making experience to a patient’s bedside, their family sitting in a family surgical waiting room, a private home or a workshop. Donor benefits include a weekly subscription to our upcoming newsletter. You can share the powerful healing moments experienced by program participants and their families. 

The Red & Orange House is a 501(c)(3) non-profit organization (pending); all gifts are tax-deductible to the extent allowable by law.

cell: 561.715.7878

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